Hundreds of local children, adults and families get ready to put their best foot forward to unite to fight congenital heart disease at the 2013 Central Texas Congenital Heart Walk!
Thousands of individuals in over 25 cities across the country will unite to raise funds to fight congenital heart disease this year; including right in our community on March 16, 2013 at Mueller Park. Registration will begin at 8:00 am, followed by a brief presentation and walk. There is no cost to join this event, but it is recommended that participants raise $100 each.
The Congenital Heart Walk (www.congenitalheartwalk.org) is an exciting joint effort between the Adult Congenital Heart Association (ACHA) and The Children’s Heart Foundation (CHF), and is the only grassroots fundraiser in the U.S. created specifically to honor and remember the millions who have been impacted by congenital heart disease. The Congenital Heart Walk raises awareness and funds vital research, education, support, and advocacy programs for the congenital heart disease community. The Central Texas area Congenital Heart Walk is proudly sponsored by Children’s Cardiology Associates and Pediatric Cardiology of Austin
Facts About Congenital Heart Disease
- A congenital heart defect is a problem with the heart’s structure that is present at birth.
- Heart defects are the most common birth defect. Almost one out of every 100 babies is born with a heart defect.
- Due to advances in treatment of heart defects, over 85% of babies born with a heart defect now live to at least age 18.
- Approximately two to three million children and adults are thought to be living in the
United States with congenital heart disease.
- In most cases, scientists do not know the cause of heart defects, but believe environmental factors, maternal conditions and genetic factors play a role.
- Today, most heart defects can be corrected or helped with surgery, medicine or devices, such as artificial valves and pacemakers.
- However, individuals with congenital heart disease often need additional operations and/or medications as adults.
This year’s participants will include teams of families, friends and co-workers from across the region. As Bill Foley, Executive Director of the Children’s Heart Foundation and father of a congenital heart defect survivor recently stated, “We are excited to be partnering with ACHA in this national effort to raise awareness about congenital heart disease. Money raised by this collaboration will positively impact both organizations now and in the future.”
“We are thrilled to continue our successful partnership with CHF, especially as Congenital Heart Walks continue to expand to more locations across the country,” said ACHA President/CEO Amy Verstappen, who is also a congenital heart defect survivor. “By bringing together adult survivors of congenital heart defects with today’s parents of children with congenital heart disease, we can raise awareness and funding to ensure that every person born with congenital heart defects thrive throughout the lifespan.”
This year, in addition to our local event, the walk will take place in over 25 locations across the country, including the New York City, Los Angeles, Chicago and Boston metro markets!
As Honorary Chair, Deanne Breedlove says, “Shawn and I want to invite everyone to join us on Saturday, March 16th as we walk alongside families of children who have bravely faced the challenges that come with having a congenital heart defect. Our hope is for the day when heart defects no longer exist. Until then, we all have the privilege of raising funds for cutting edge research to combat the cause and effects of CHDs. We look forward to having you join us as we spend a beautiful Saturday morning encouraging one another and celebrating the hope we have as we work to improve the quality of life for our children.”
About the Adult Congenital Heart Association
The Adult Congenital Heart Association (ACHA) is a national non-profit organization dedicated to
improving the quality of life and extending the lives of adults with congenital heart defects (CHD).
ACHA serves and supports the more than one million adults with congenital heart defects, their
families and the medical community—working with them to address the unmet needs of the long-
term survivors of congenital heart defects through education, outreach, advocacy, and promotion
of ACHD research. For more information about the Adult Congenital Heart Association, contact
(888) 921-ACHA, or visit www.achaheart.org.
About The Children’s Heart Foundation
The Children’s Heart Foundation (CHF) is the only organization that was created to exclusively
fund congenital heart defect research. CHF has funded over $5 million of vital, life-saving
CHD research since its inception, which included over $500,000 in 2012. In addition, CHF has
published and distributed 35,000 English and 3,000 Spanish copies of It’s My Heart, a patient
and parent resource book. CHF has established twelve Chapters including one in New York, and
has volunteers in many US states. For more information about The Children’s Heart Foundation,
contact 847-634-6474, or visit www.childrensheartfoundation.org.